NORTH TONAWANDA, N.Y. (WKBW) - The Seneca family brought their baby girl Diana home from Oishei Children's Hospital 10 days ago, but they did so without Jessica Seneca's cell phone. The phone had hundreds of photos documenting Diana's first few days.
The concern is mom and dad aren't sure how much longer they'll have to spend with Diana. She was born with a neurological disorder called holoprosencephaly (HPE). The family has Diana living at home in hospice.
"Having to go through all of this, it's hard," Dana Seneca, Diana's father, said Thursday.
"It's scary, sometimes, not knowing what is going to happen the next day when you wake up," Diana's mother, Jessica, said.
A volunteer photographer with Now I Lay Me Down to Sleep visited the Seneca family in their home, Thursday. Stephanie Jane Lewczyk runs a professional photography business, but spends time volunteering with the national organization. The group does free photo sessions with families expecting to lose an infant.
Now, the family will always have these photos to remember Diana. No matter what happens.
"She's taught me how to be stronger and taught me that pretty much anything that comes at you, you can make it through it," Jessica said.
A friend of the family has started a GoFundMe page to raise money for the Seneca family, in part, to be able to bring in someone to help care for the two older girls. That way, Jessica can focus more of her attention on Diana.