A North Tonawanda woman is bringing new awareness to Lou Gehrig’s disease, otherwise known as ALS, or Amyotrophic Lateral Sclerosis.
Marcia Nachreiner and her family are calling her journey, “a love story,” and they are using the power of family, friends and music to deliver awareness, as well as healing and comfort.
“The disease basically takes a little bit of life out of the person or the individual that has it every day.”
Nachreiner has been battling ALS for over two years.
On Sunday, July 23, her family will hold their ‘Music for Marcia’ fundraiser, which will feature several Western New York musicians.
“The music brings a level of balance and relaxation, of course to support the ALS my aunt is suffering with right now and it allows her to feel a bit more relaxed as well as bring the group together,” said Brandi Sharratt.
While the progression of Marcia's ALS has made it difficult for her to speak, her family tells us it's her giving nature that has so many in the community coming out in support of Marcia in her time of need.
The estimated out of pocket cost to care for someone with ALS is $250,000.
Sunday's fundraiser will be held from 1 p.m. to 6 p.m. at the St. Johnsburg Fire Hall pavilion located at 7165 Ward Road in North Tonawanda.
Donations can also through a GoFundMe page.