Walk for Awareness

August 15, 2013 Updated Aug 15, 2013 at 1:12 PM EDT

By WKBW News

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August 15, 2013 Updated Aug 15, 2013 at 1:12 PM EDT

Orchard Park, N.Y. (WKBW) - Chase Wieszczinski, 5, is a typical little boy.

"I like to play baseball," Wieszczecinski said.

That's just what he and his family were doing when Channel 7's Good Morning crew went to visit their home in Orchard Park. Although he is going strong now, his parents Gigi and Kevin said it took a long time to get where he is today. Chase was diagnosed with Chiari Syndrome at three-years-old.

"Arnold Chiari malformation. It basically where the brain is suspended into the spinal column. Some of the symptoms are migraine, back pain, problems walking," Kevin Weiszczecinski said.

With Chiari, the brain is too big for the scull and it is being pushed down toward the spine. Chase had a major surgery to try alleviate some of the symptoms.

"They cut out a piece of his scull and shaved the dura matter around the brain," Kevin Weiszczecinski said.

Now, he is doing well but Kevin and GiGi sai they couldn't do it without the support of other local families touched by Chiari. They are raising money during the month of September, designated as Chiari Syndrome month.

"There will be a walk at Ellicott Creek Park this year on September 21st," Gigi Weiszczecinski said.

They said the money will go toward research of the syndrome.

"There is no cure. there is not enough known about it. All you can do is surgery to help the symptoms," Gigi Weiszczecinski said.

The Weiszczecinski say although money is extremely important, the people they met on their journey are the true lifesavers. As for Chase, he is living up to his name, not letting anything get in his way.

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