Hunter's Legacy: Newborn Screening Helps A Local Family

April 25, 2014 Updated Apr 25, 2014 at 4:04 PM EDT

By WKBW News

April 25, 2014 Updated Apr 25, 2014 at 4:04 PM EDT

After Jim Kelly led the Bills on the field, the former Hall of Fame quarterback picked up the fight for universal newborn screening.

His interest began when his son Hunter was born with Krabbe, a disease of the nervous system that claimed his life at age 8.

Jim and his wife Jill feel his outcome would have been different if they knew at birth he had the disease, but it was not one of the diseases tested, until now. The Kellys won the push to put it on the list of some 40 diseases newborns are tested for in New York.

A Niagara Falls family knows well the importance of newborn screening. It was used to diagnose their three children with a metabolic disorder, preventing them from suffering severe developmental disabilities. Eyewitness News Anchor Joanna Pasceri has their story here.

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