Meet A Young Ambassador

March 3, 2011 Updated Mar 3, 2011 at 9:36 AM EDT

By Ed Reilly

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March 3, 2011 Updated Mar 3, 2011 at 9:36 AM EDT

TONAWANDA, NY ( WKBW ) 15 year old Rachel Lyons is a special young lady.

She is a good home school student who won an education award from President George Bush in 2007.

While she likes to play some computer games, like most teenagers, Rachel is also a very active community volunteer.

Rachel makes time to help St. Luke's Mission Of Mercy. When the October surprise storm left Western New Yorkers displaced, Rachel worked in a shelter alongside Doctor Luther Robinson.

What is more surprising about this incredible young lady is that she does all these things while battling two different chromosome disorders, "vater syndrome" and "turner syndrome." Rachel was diagnosed with vater syndrome before she was born. It affected her heart, spine, and lower body strength. Rachel was only three months old when she had her first surgery.

However, Rachel did not let any of this slow her down. At only 18 months old, she became the youngest child ever accepted into SABAH, the Skating Association For the Blind and Handicapped.

But then came the diagnosis of "turner syndrome," a condition that will affect her physical development as a woman. Often girls with "turner syndrome" only grow to a very small height.

For a teenage girl, the social implications of these conditions can be devastating. That is why the Variety Club funds an independent not-for-profit group called The Children's Growth Foundation.

Last year, the foundation held a special overnight camp for girls with turner syndrome. This year, Variety has picked Rachel Lyons to be one of their ambassador children, because this young lady is not letting her disability stop her from loving life or her community.

Make a pledge to the Variety Kids Telethon this Sunday from 7am - 7pm on WKBW Channel 7.