Orchard Park, N.Y. (WKBW release) -- Hunter’s Hope Co-Founder and New York Times Best Selling Author Jill Kelly met with representatives of Walmart on Tuesday to receive $75,000 for the Hunter’s Hope Foundation, on behalf of the Walmart Foundation’s State of Giving Program.
Funding from the grant will assist with the cost of the Foundation’s Annual Family and Medical Symposium, which takes place in Western New York each summer.
“We are excited that Walmart can provide a grant once again to Hunter’s Hope as they continue to raise money in the fight against Krabbe Disease and other related Leukodystrophies,” said Jason Klipa, Director of Public Affairs and Government Relations for Walmart. “The awareness the Kelly family has brought to newborn screening and to other programs available to families affected by these rare diseases is an inspiration.”
Since 2008, the Walmart Foundation’s State of Giving Program has contributed over $300,000 toward this Hunter’s Hope Family Program. Many affected families face financial hardship due to the cost of caring for their children; due largely in part to Walmart’s continued support, Hunter’s Hope has been able to cover the majority of expenses for families affected by leukodystrophies. Expenses include lodging, food, education presentations from renowned researchers and more.
“We are so grateful for support that Walmart continues to provide Hunter’s Hope,” shared Jill Kelly during the check presentation at the Hunter’s Hope Corporate Offices in Orchard Park. “These children and their families are so precious. I can’t express just how special it is to be able to come together with families who have been where you’ve been, and be surrounded by the comfort and love of others who have gone through the same things as you. Walmart helps make this possible.”
The Family and Medical Symposium is an annual week long Hunter’s Hope event that brings families and researchers from all over the world together in Western New York to discuss the most current research findings and treatment options related to Krabbe and other Leukodystrophies.
Additionally, affected families are able to build relationships amongst each other; relating to each other’s experiences.
The Medical portion of the gathering brings together the world’s leading researchers specializing in rare metabolic disorders, pediatric development and newborn screening. The ultimate goal of Hunter’s Hope is to collaborate research efforts in order to better advance treatment options and find a cure for Krabbe Disease and other Leukodystrophies.